Health Update
Health related stuff to follow, don’t read if periods/surgery stuff is hard for you. But if this is something you’re cool reading…what I’m going to say in a LOT more words is that it’s really, really fucked up how hard it is to get help with menstruation/uterus related medical care that actually WORKS and/or to be listened to or respected about those issues.
I keep thinking about how so many things have happened with my health in the past year that I haven’t even had time to mentally or emotionally process it and by the time that I could get a moment to try…………..boom, pandemic. I can’t remember how much I’ve written here about it generally…BUT trying to summarize quickly, after the bad car accident that fucked up my arm and I had surgery to fix it, the MRI scans they took at the ER that night opened a god damn Pandora’s box of shit in there I needed to take care of. I went from understanding myself as a person who has one mild chronic health issue to……….someone with four.
The biggest issue that was discovered was a wide spread and a really advanced case of endometriosis. My gyno surgically removed multiple endometriomas from both of my ovaries, the largest of which was bigger than a grapefruit. After I recovered from surgery, I started taking the only medication that specifically exists to inhibit more endometrial growth and manage the pain. (And it’s a pretty new drug at that.) My doctor didn’t really fully consider that one of its biggest side effects is depression and anxiety and as someone whose mental health has only rather recently gotten in a better place, after a couple of months on this new medication, I felt like how I felt before I started taking anti anxiety meds. That was suuuuuper untenable and I couldn’t stay on it.
So I had to go back to square one on how to keep my endo at bay. But this time in the story of “how the fuck to treat this raging case of endo” we’re now into late March and in the pandemic when I get to the point where my doctor explains that pretty much the only other option for me is to try an IUD. Hearing that pretty much made me almost breakdown crying in the appointment. (I held it together long enough to get home for that.)
I’ve always loved that IUDs exist for people who want them, bc I’m obvi all about access to the birth control anyone wants and I have lots of friends who LOVE theirs and extol their virtues. But literally ever since the moment I learned about then when I was like 17 I have been super averse to the concept for myself. I had long ago filed IUDs under “NOPE” in my brain. I’m just one of those folks who is grossed out by the idea of foreign material just existing inside my body. But after going through having already had a bunch of hardware in my arm and knowing how shitty it felt trying the endo meds, I said FUCK IT and took the plunge to get an IUD.
(Side note: seeking this type of medical care in the middle of the pandemic was super creepy dystopian and like being in a fucking episode of A Handmaid’s Tale because I was usually the only person there who was not VERY visibly pregnant because only totally “medically necessary” procedures were allowed, all the masks, plastic partitions, spacing of patients, etc., etc. Just weird.)
The IUD insertion itself was a nightmare if I’m really honest and the ultrasound they did at that point disappointedly revealed ANOTHER endometrioma already growing back that my doc wants to now keep an eye on……..BUT the good news is that bad insertion experience aside, so far I’m feeling pretty good about using it. It’s been almost 3 months with it and the biggest revelation by far has been that the terrible, monster periods I had FOR YEARS just didn’t need to be what they were. In such a short span of time having much much much lighter ones, I’ve already begun to wonder what I was thinking just trying to suffer through that experience for so long.
If you’ve read my stuff here over the past few years, you’ll know that my period was the most raging heavy and intense…….I mean, I have a whole fucking tag for it. I had to go out of my way to find the largest capacity menstrual cup IN THE LITERAL WORLD and I would fill it a few times a day. You’d hear me say “oh hey, FYI your periods can get much heavier the older you get” which is true, mind you, but I had no idea that what I was experiencing was really really well beyond the bounds of what is “normal” and indicative of a bigger health issue. I told my doctor (who I don’t really fault, she has a lot of good qualities) about it and she thought it was just normal aging stuff. I didn’t advocate for myself as much as I should have and she didn’t listen to me well enough as she should have and the result is that for about 5 years I had untreated and undiagnosed endo that resulted in that grapefruit sized endometrioma and all her friends.
There were other signs too…my cramps had gotten incredibly horrific. Once the endometriomas were all removed, I realized they had been doing stuff like pressing on my bladder, making it hard to pee/empty it all the way and I couldn’t lay in bed in certain ways pain free. Getting this diagnosis was scary but it all started to make sense. And it’s still making sense the more I unravel my understanding of the past several years of my life. What I was going through was not normal, but it also wasn’t being taken seriously by anyone, perhaps most of all, by myself.
So yeah, I’m still processing this news and seeking to better understand that I didn’t have to feel like that for so long. I’ve got this tendency baked into me to assume and accept that “life is suffering” (thanks, dad) and that you must grin and bear it and just survive. I think that when it comes to issues that involve menstruation or uterine issues, that this message is even LOUDER because we are shamed into not speaking about these things publicly by society more widely. Their discussion is stigmatized, belittled, glossed over, filed under “ewwwww grossssss” etc.
But obviously, that’s not how it has to be…………….if I am hurting or uncomfortable I am WORTH the effort of trying to figure out why and see if I can fix it. And if that issue involves my period or uterus or ovaries SO BE IT. There’s nothing inherently gross or TMI about that. They are body parts and they get conditions. That’s life.
Anyway, I really enjoyed Padma Lakshmi’s interview by Terry Gross on Fresh Air this week and it influenced me wanting to write this. She talks about her own endo story and it really resonated with me. (She also had a terrible arm injury in her past. We’re basically twins LOLOLOL.) As I said, I’m still processing ALL of this. But if there’s one thing I know for sure, it is that having endometriosis sucks but knowing you have it is waaaaaaaaay better than not knowing.